Representative Chris Van Hollen (MD) addresses Congress’ role in fighting Alzheimer’s disease.
The next meeting of the Advisory Council on Alzheimer’s Research, Care, and Services will be held at the U.S. Department of Health and Human Services (HHS) on Monday, April 29, 2013 from 9:00am to 5:00pm EDT. The meeting will also be webcast live on http://www.hhs.gov/live.
Additional information is available here:
U.S. Department of Health and Human Services is soliciting nominations for a new, non-Federal member of the Advisory Council on Alzheimer’s Research, Care, and Services.
Read more about the nomination process here.
New videos and a meeting summary from the January 14, 2013 meeting of the Advisory Council on Alzheimer’s Research, Care, and Services are now available.
The next meeting of the Advisory Council on Alzheimer’s Research, Care, and Services will be held on Monday, January 14, 2013 from 9:00am to 5:00pm EST. The meeting will be held at the U.S. Department of Health and Human Services (HHS), 200 Independence Avenue, S.W., Room 800, Washington, D.C. 20201, and webcast live on
The Advisory Council will hear updates from the three subgroups (Research, Clinical Care, Long-Term Services and Supports) on the implementation of the National Plan to Address Alzheimer’s Disease. The Advisory Council will also hear a presentation on work underway by the U.S. Department of Veterans Affairs to support Veterans with Alzheimer’s disease and their caregivers. Subcommittee chairs will present recommendations for adoption by the Advisory Council as formal recommendations to the Secretary of HHS and Congress.
Public Attendance: Seating may be limited. Individuals who wish to participate should send an email to email@example.com with “January 14 Meeting Attendance” in the Subject line by Friday, January 4, 2013. Names need to be put on a list of expected attendees and forwarded to the security officers at HHS. Any interested member of the public who is a non-U.S. citizen should include this information at the time of registration to ensure that the appropriate security procedure to gain entry to the building is carried out. Although the meeting is open to the public, procedures governing security and the entrance to federal buildings may change without notice.
Public Input: Time is allocated on the agenda to hear public comments. Attendees who wish to make public comments should include that information in their “January 14 Meeting Attendance” email; this information is also needed by Friday, January 4, 2013.
In lieu of oral comments, formal written comments may also be submitted to:
Helen Lamont, Ph.D.
HHS Office of the Assistant Secretary for Planning and Evaluation
Room 424E, Humphrey Building
200 Independence Avenue, SW
Washington DC, 20201
Those submitting written comments should identify themselves and any relevant organizational affiliations. Comments will be shared with the Advisory Council.
The meeting upcoming meeting of the Advisory Council on Alzheimer’s Research, Care, and Services will be held on Monday, October 15, 2012 from 9:00am to 4:30pm EST and will be webcast live on http://www.hhs.gov/live.
The Agenda and the presentation slides are available at http://aspe.hhs.gov/daltcp/napa/#Oct2012Mtg.
Also available is a new list of Alzheimer’s related acronyms http://aspe.hhs.gov/daltcp/napa/acronyms.shtml.
Implement the National Alzheimer’s Project Act
In 2050, up to 16 million Americans will have Alzheimer’s disease, creating an enormous strain on the health care system, families, and the federal budget. Recognizing this growing crisis, Congress unanimously passed and President Obama signed into law the National Alzheimer’s Project Act (NAPA), calling for the creation of a National Alzheimer’s Plan. In May of 2012, the first National Alzheimer’s Plan was released. An update to the plan was released in June of 2013. In support of the Plan, the President’s fiscal year 2014 budget proposal includes $100 million in additional funding for research, awareness, education and outreach, and caregiver support.
Increase the commitment to Alzheimer’s research
Over the next 40 years, Alzheimer’s will cost our country $20 trillion. Nearly 60 percent of that will be borne by Medicare. If we had a treatment that delayed onset of Alzheimer’s by just five years, Medicare spending would be reduced on those with the disease by 45 percent in 2050. Unfortunately, there continues to be a chronic underinvestment in Alzheimer’s disease research. The President’s budget proposal would take a first step toward finding the needed treatments, prevention, and cure by including an additional $80 million for Alzheimer’s research.
Expand education efforts and caregiver support services
Despite the growing number of Americans directly affected by Alzheimer’s, there are still widespread misconceptions about the disease, and health care providers are unprepared and undertrained in how to deal with individuals with Alzheimer’s and their families. In addition, support for unpaid family caregivers is wholly inadequate. The President’s budget proposes $20 million for provider education and outreach, public awareness, and caregiver support.
A major goal of the National Alzheimer’s Plan is to Prevent and effectively treat Alzheimer’s disease by 2025.
For 2012, the Plan includes $50 million in additional funding for Alzheimer’s research at the National Institutes of Health (NIH). The fiscal year 2013 budget request proposes an additional $80 million for Alzheimer’s research. In fulfillment of one of the Plan’s action steps, the NIH held an international research conference in May 2012 to begin mapping the specific path, strategies and priorities that are needed to reach the Plan’s goal of preventing and effectively treating Alzheimer’s by 2025. Furthermore, international outreach to governments and public-private partnerships will be expanded to enhance collaboration and coordination of research efforts.
A major issue addressed in the National Alzheimer’s Plan is the optimization and improvement of the quality of Alzheimer’s care.
Currently the plan provides for $2 million will be used to educate health care providers about Alzheimer’s disease through Geriatric Education Centers. An additional $4 million has been included in the fiscal year 2013 budget request. The federal government is also tasked with creating and marketing a clearinghouse of dementia care curricula and practice recommendations for providers across the care continuum. And, new training materials on high-quality, person-centered care for individuals with Alzheimer’s will be available for the nursing home workforce.
Other improvements will focus on new approaches to coordinating care, the development of models of care for those transitioning from one care setting to another and identifying barriers to long-term services for those with younger-onset Alzheimer’s disease.